Documents
Documents
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Registration checklist (DE only)
Download, Pdf (31 KB) -
For parents and guardians: Information on participating in the National Registry for Rare Diseases (DE only)
Download, Pdf (202 KB) -
For adolescents: Information on participating in the National Registry for Rare Diseases (DE only)
Download, Pdf (187 KB) -
For patients: Information on participating in the National Registry for Rare Diseases (DE only)
Download, Pdf (196 KB) -
NARSE flyer
Download, Pdf (262 KB) -
NARSE data protection policy with data protection impact assessment (DE only)
Download, Pdf (3 MB) -
NARSE dataset (DE only)
Download, Pdf (156 KB) -
NARSE terms of use (DE only)
Download, Pdf (389 KB) -
NARSE registry protocol (DE only)
Download, Pdf (542 KB) -
NARSE user guide (DE only)
Download, Pdf (7 MB) -
NARSE ethics vote at Charité (DE only)
Download, Pdf (1 MB) -
NARSE ethics application Charité (DE only)
Download, Pdf (195 KB) -
NARSE reporting agency agreement (DE only)
Download, Pdf (478 KB) -
NARSE list of registrants (appendix to the reporting agency agreement) (DE only)
Download, Pdf (173 KB) -
NARSE TMF data protection vote (DE only)
Download, Pdf (267 KB) -
NARSE form (DE only)
Download, Pdf (147 KB)















